Please email me if you have any resources to add to this list.
CONNECTING
Fibular Hemimelia and Amputation Awareness Facebook Group.
One of the most valuable resource to connect with parents from all over the world.
INSPIRING COMMERCIALS FEATURING AMPUTES
Aimee Mullins & Kenneth Cole
Nico & Powerade
Amy Purdy & Toyota
Aimee Mullins & L'Oreal
BP's 2012 Olympic/Paralympic Games (with Jerome Singleton)
OTHER INSPIRING VIDEO FEATURES
Amy Purdy on Dancing With the Stars (2014)
Models of Diversity
Overcoming Obstacles TED video
The girl with the 'zebra leg' wows Hog country news article
Sara Walsh feature
Shriners Hospitals: A Tale of Two Patients
MOVIES
Soul Surfer
Dolphin Tale
How to Train Your Dragon
Finding Nemo
BOOKS
TOYS
Sew-able Dolls (American Girl-like dolls with prostheses)
Special Angel Dolls (Cloth dolls with arm and leg differences; they also custom make dolls to your match your child's limb difference!)
SaraBears (amputee teddy bears)
Barbie Fashionista Doll #121 (Target)
Walmart used to carry an American Girl-type doll with a prosthetic blade
CAMPS
Camp No Limits
Adventure Amputee Camp
Paddy Rossbach Youth Camp (Amputee Coalition of America)
Camp No Limb-itations (Children's Healthcare of Atlanta)
SPORTS CLUBS
Blaze Sports
Paralympics Sports
ORGANIZATIONS
Limbs for Life
Amputee Coalition of America
International Child Amputee Network (ICAN)
Shriners Hospitals for Children
Thank you for these I am currently pregnant with my second little girl and she has been diagnosed with FH . Some great books to read to my three year old and our soon new edition to our family . Your blog is inspiring thank you and God bless you all
ReplyDeleteThis is a great story. My son was diagnosed with FH when he was nine months old as I noticed a mark on his right calf when he was born and noticed the absence of his right ankle bone. He began walking at ten months old and had a bow to his leg but never let they stop him. He had his ankle reconstruction surgery the spring of 2014 and spent the summer in three different casts. He handled it like a champ and climbed just as much if not more than he had before. He is going to have a second surgery when he is in grade school then a third survey when he's about 16. He's 3 now. He wears a lift on his right shoe and gets around like any other kid. He doesn't even know there's any difference than any kids and the other kids don't treat him different. Love him to pieces!
ReplyDeleteWe just found out my daughter has this, we found out early as she is still in the womb. But I was just wondering if some parents could give some advice or just a person to talk to. Please feel free to email me. Fassben5@uwm.edu thank you
ReplyDeleteJake